CLOSURE OF ISLAND NEUROLOGICAL NETWORK November 2020
It is with regret that Island Neurological Network will no longer be operating with immediate effect.The number of volunteers able to continue the work has reduced, compounded by the COVID 19 pandemic restrictions. We are all sorry but feel we have helped each other to raise awareness of the existence of a network of small voluntary groups that continue to exist, as well as larger organisations who continue to support those limited by neurological illness, their families and carers. Sadly,gaps in the statutory system remain, locally and nationally.
As well as the local support groups which to our knowledge remain active both People Matter IW, Community Action IW and Carers IW will still be able to support those with Long Term Neurological conditions in a variety of ways, face to face. Each organisation has regular email newsletters but you need to approach directly with your contact details.
In addition the weekly information stand operated by INN in the foyer at St Marys Hospital is no longer available due to building works to make way for Costa.
Hampshire Neurological Alliance our parent charity continues, albeit with a very small number of Trustees and volunteers. It covers Hamphire and Isle of Wight.https://www.hampshireneural.org.uk/
The HNA Information Booklet is available via IOW NHS Trust website , at present – search “neurology” on the IOW NHS Trust home page. https://www.iow.nhs.uk/our-services/acute-care-services/neurology.htm
Also the national Neurological Alliance will continue to be an umbrella organisation representing our interests at national level. There is a large directory of resources available on line at https://www.neural.org.uk/
Brain and Spine Foundation offers a help line service on 0808 808 1000. https://www.brainandspine.org.uk/
With huge thanks for all your support and interest,
Chris Bull ( SUDEP) , Maureen Martinez (MNDA) , Roger and Lynne Pitcher ( Myaware) and Dr Annette Scivier (HDA )