A new support group has been set up to help provide information and support to thousands of people on the Island suffering from a neurological illness. The newly formed Island Neurological Network has been established to help bridge the gaps on the Isle of Wight by connecting people with information and support from existing groups within the local community. It does not seek to replace medical, nursing or social care but to help sufferers and their families to connect with the right help in a way that suits them.

Around 2,000 people on the Island, suffer from a neurological illness, excluding stroke and dementia. These include illnesses such as Parkinson's Disease, Motor Neurone Disease, Myasthenia, Brain injuries, Epilepsy, Ataxia, Multiple Sclerosis and Huntingdon's Disease, all requiring care and treatment which is often very complex and which can last for many years. With health and social care budgets restricted and with geographical isolation presenting further challenges, many families and individuals are finding it hard to get up to date, relevant and practical information and support to help them cope on a daily basis. Dr Annette Scivier who helped establish the group said: "Neurological illnesses can have a devastating impact on the whole family and having access to support and help in a way that suits their needs can make a huge difference to how they are able to manage on a day-to-day basis. We hope that by bringing the community together through this new network we can now highlight the support available and identify any gaps that exist to benefit these individuals, their carers and families."

The security of your data is very important to us, so we have just completed a new terms of reference which you can access by clicking here.

For further information about the group please call 07762 756149


IOW dates

INN Cafe Dates

INN Cafe poster Oct 2019

Positive Steps to Wellbeing - Click here for a flyer with more information

We have a new leaflet - Click here to download the leaflet which includes Island contact details

We have a new member of staff

We are pleased to announce that Sandy Ciccognani is our new Coordinator 'Drop In Cafes' Island Neurological Network (INN) Hampshire Neurological Alliance (HNA). She can be contacted via the INN email: islandneurologynetwork@gmail.com or phone 07762756149



You may find the following organisations useful:-

IOW User Led Organisation for those with disabilities- includes an Independent Living Centre to demonstrate adaptations in Newport, IOW, www.peoplematteriw.org

OW based organisation supporting those with Long Term Conditions and Carers, alongside Community Action  www.communityactionisleofwight.org.uk  and www.carersiw.org.uk

ATAXIA UK - Alan Read 01983 867946  email punkyal1970@gmail.com

HEADWAY ( acquired brain injury and epilepsy) - Joy Cleightonhills 01983 874651 email hiowsecretary@gmail.com Or find on Facebook

HUNTINGTONS DISEASE ORGANISATION - Eve Payler  02380 612218 email eve.payler@hda.org.uk Or Annette Scivier  Annette@scivier.uk or find on Facebook

MOTOR NEURONE DISEASE ORGANISATION - Maureen Martinez 01983 615701 email mam_nfm@yahoo.co.uk www.mndiw.org.uk

MULTIPLE SCLEROSIS - Jenny Harrod 07976 629012(text and voicemail only) email islesupport@mssociety.org.uk
www.wight-ms.org.uk  Or find on Facebook

MUSCULAR DYSTROPHY CAMPAIGN - Colin Baker 01983 242961 email feathers455@hotmail.co.uk

MYAWARE - Lynne Pitcher 01983 761265 email piglettina@btopenworld.com

PARKINSON’S UK - Rosemary Smith 0344 225 3678 email advisor9.southcentral@parkinsons.org.uk

ISLE OF WIGHT ASSOCIATION OF SPINA BIFIDA AND HYDROCEPHALUS - Freya Conway 07535 004502 email littleowl2013@gamil.comwww.iwasbah  or find on Facebook

STROKE - Isle of Wight Stroke Club 01983 869 100  email enquiries@wightfightingstroke.org Mary Barton  Information,Advice & Support Coordinator - Isle of Wight Direct line 01983 898301 iow@stroke.org.uk



Images from a 2016 event on the Island

Event   Event   Event   Event

Thanks to the Isle of Wight County Press.

Thank You

Thank you to "My Life a Full Life - the island Vanguard project" which is funding some of the valuable work we are doing on the Island.