A new support group has been set up to help provide information and support to thousands of people on the Island suffering from a neurological illness. The newly formed Island Neurological Network has been established to help bridge the gaps on the Isle of Wight by connecting people with information and support from existing groups within the local community. It does not seek to replace medical, nursing or social care but to help sufferers and their families to connect with the right help in a way that suits them.
Around 2,000 people on the Island, suffer from a neurological illness, excluding stroke and dementia. These include illnesses such as Parkinson's Disease, Motor Neurone Disease, Myasthenia, Brain injuries, Epilepsy, Ataxia, Multiple Sclerosis and Huntingdon's Disease, all requiring care and treatment which is often very complex and which can last for many years. With health and social care budgets restricted and with geographical isolation presenting further challenges, many families and individuals are finding it hard to get up to date, relevant and practical information and support to help them cope on a daily basis. Dr Annette Scivier who helped establish the group said: "Neurological illnesses can have a devastating impact on the whole family and having access to support and help in a way that suits their needs can make a huge difference to how they are able to manage on a day-to-day basis. We hope that by bringing the community together through this new network we can now highlight the support available and identify any gaps that exist to benefit these individuals, their carers and families."
The security of your data is very important to us, so we have just completed a new terms of reference which you can access by clicking here.
For further information about the group please call 07762 756149
Positive Steps to Wellbeing - Click here for a flyer with more information
We have a new leaflet - Click here to download the leaflet which includes Island contact details
We are pleased to announce that Sandy Ciccognani is our new Coordinator 'Drop In Cafes' Island Neurological Network (INN) Hampshire Neurological Alliance (HNA). She can be contacted via the INN email: firstname.lastname@example.org or phone 07762756149
You may find the following organisations useful:-
IOW User Led Organisation for those with disabilities- includes an Independent Living Centre to demonstrate adaptations in Newport, IOW, www.peoplematteriw.org
ATAXIA UK -
Alan Read 01983 867946 email email@example.com
HEADWAY ( acquired brain injury and epilepsy) - Joy Cleightonhills 01983 874651 email firstname.lastname@example.org Or find on Facebook
HUNTINGTONS DISEASE ORGANISATION - Eve Payler 02380 612218 email email@example.com Or Annette Scivier Annette@scivier.uk or find on Facebook
MOTOR NEURONE DISEASE ORGANISATION - Maureen Martinez 01983 615701 email firstname.lastname@example.org www.mndiw.org.uk
MULTIPLE SCLEROSIS - Jenny Harrod 07976 629012(text and voicemail only) email email@example.com
www.wight-ms.org.uk Or find on Facebook
MUSCULAR DYSTROPHY CAMPAIGN - Colin Baker 01983 242961 email firstname.lastname@example.org
MYAWARE - Lynne Pitcher 01983 761265 email email@example.com
PARKINSON’S UK - Rosemary Smith 0344 225 3678 email firstname.lastname@example.org
ISLE OF WIGHT ASSOCIATION OF SPINA BIFIDA AND HYDROCEPHALUS - Freya Conway 07535 004502 email email@example.com or find on Facebook
STROKE - Isle of Wight Stroke Club 01983 869 100 email firstname.lastname@example.org Mary Barton Information,Advice & Support Coordinator - Isle of Wight Direct line 01983 898301 email@example.com
Images from a 2016 event on the Island
Thanks to the Isle of Wight County Press.
Thank you to "My Life a Full Life - the island Vanguard project" which is funding some of the valuable work we are doing on the Island.